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Northwest Parkinson's Foundation 

Description

Northwest Parkinson's Foundation (NWPF) plays a vital role in helping people with Parkinson’s live meaningfully with the disease. The information that the Foundation provides gives patients and their families the tools they need to find quality medical care, better manage their disease and take charge of their daily lives. Our work also extends to healthcare providers and seeks to build awareness among the general public in order to create a continuum of care sensitive and beneficial to the Parkinson’s community. Our primary constituency resides in the Northwest (WA, OR, ID, MT and AK), home to 70,000+ Parkinson's patients. This number increases exponentially when we include the spouses, family members, caregivers and friends who are also impacted by the disease.

Mission Statement
To establish optimal quality of life for the Northwest Parkinson's community through awareness, education, advocacy and care.

The NWPF achieves our mission by supporting specialty care, producing and distributing free educational and support resources, raising awareness of Parkinson's disease and fostering programs that help improve quality of life for patients, families and caregivers.
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Northwest Parkinson's Foundation
400 Mercer St Ste 502 
Seattle 
WA
98109-4641 
(877) 980-7500 

Steve Wright 
Executive Director 

Programs

Northwest Parkinson's Foundation Programs

Booth Gardner Parkinson's Care Center
An early mark of success came in 2000, when NWPF co-founded the BGPCC in partnership with Evergreen Health in Kirkland. The center is the only multidisciplinary movement disorder care center in the region, providing a full range of services from physicians, nurse practitioners, therapists and social workers all under one roof. Since its founding, the center has grown into a national model for care and now serves over 4,000 patients each year.  The Center is now operated in whole by Evergreen Health.

Inspiration & Education
Through our quarterly
 Parkinson's Post newsletter and weekly email updates, NWPF features inspirational stories of people living with Parkinson's, along with current information on treatment and care and the latest in clinical research. In addition, over 500 people in rural communities throughout the Northwest participate in our monthly PD University; Lunchtime Laboratory; and an interactive website featuring Parkinson's specialists. We also host 10-12 patient education programs annually on a range of topics to enhance the well-being of patients and caregivers alike. New to NWPF in 2014 is our client services program, led by MSW Maria Cole, which includes peer support network opportunities like PD Link Northwest.

Interactive Website
Our website (
www.nwpf.org) is updated daily with news and information on Parkinson's and listings of Parkinson's-specific events and activities occurring throughout the Northwest. The site also hosts our virtual Wellness Center where patients, families and caregivers can gain access to information, therapies and professionals and design and track their own wellness prescription. PDCommunity is an interactive blog moderated by NWPF Medical Director Dr. Monique Giroux, featuring articles by nutritionist Dr. Laurie Mischley, cartoonist Peter Dunlap-Shohl and other service providers.

Recent Successes and Current Challenges

Over the past two years, we have dramatically increased our capabilities and capacity by adding two critical positions to our staff – a part-time Medical Director, Dr. Monique Giroux, and full-time Social Services Manager. These additions have allowed us to deepen our core capabilities and enable us to broaden our reach into the community. As a result, we are now reaching more of the Parkinson’s community than ever before. Demand continues to grow, placing even more emphasis on our ability to reach more people more effectively in the coming years. As an example of this growing demand, two recent patient education programs originally slated for 50 participants each ended up hosting 74 and 128 attendees respectively.            

The addition of Dr. Giroux to our staff has had a profound impact on the quality of the programs and services we are able to provide to the Northwest Parkinson’s community. In addition to providing a qualified medical voice to the planning and implementation of programs and services through our organization, Dr. Giroux has undertaken an impressive volume of work including: establishing and maintaining our virtual Wellness Center (
www.nwpf.org/Wellness); participating in NWPF’s regional conferences; conducting a series of Grand Rounds on Parkinson’s care; and moderating NWPF’s interactive blog PDCommunity.

Coupled with our ability to offer this higher quality programming to a broader constituency, the addition of Maria Cole, MSW, has allowed us to work more closely with support groups and social service agencies, engaging two additional levels of support and expanding the resources available to the Parkinson’s community.  NWPF offers support group facilitator training, psychosocial support at educational programs, and limited case management and counseling to patients and families.


EVALUATION

Proven Success
NWPF is a founding partner with Evergreen Healthcare, of the Booth Gardner Parkinson's Care Center. The Center provides a multi-disciplinary approach to care and treatment of Parkinson's disease and is the only Parkinson's specialty care center in this part of the nation. 

NWPF is providing quality services to patients and caregivers. Their focus is on quality of life for people suffering from Parkinson's rather than finding a cure for Parkinson's. They have been successful in building awareness of Parkinson's and developing resources to support patients and families. 

Collaboration 
NWPF presents the annual HOPE Conference on Parkinson’s in partnership with other local organizations. Now in its 13th year, the conference is the largest gathering of its kind in the Northwest, drawing 650 attendees from 10 states and featuring national exerts in living well with Parkinson’s.

Additionally, NWPF presents an annual conference that rotates among Spokane, WA, Boise ID, and Montana.  NWPF collaborates with local organizations and healthcare providers to provide meaningful needs based on educational opportunities in these more rural areas. 

Northwest Parkinson's Foundation (NWPF) provides resources and support for people living with Parkinson's disease. 

Evaluation

The Northwest Parkinson's Foundation (NWPF) provides resources and support for people living with Parkinson's disease.

Proven Success
The Foundation is a founding partner with Evergreen Healthcare, of the Booth Gardner Parkinson's Care Center. The Center provides a multi-disciplinary approach to care and treatment of Parkinson's disease and is the only Parkinson's specialty care center in this part of the nation.

NWPF is providing quality services to patients and caregivers. Their focus is on quality of life for people suffering from Parkinson's rather than finding a cure for Parkinson's. They have been successful in building awareness of Parkinson's and developing resources to support patients and families.

Collaboration
NWPF presents the annual HOPE Conference on Parkinson’s in partnership with the American Parkinson’s Disease Association Washington Chapter. Now in its fifth year, the conference is the largest gathering of its kind in the Northwest, drawing 650 attendees from 10 states and featuring national exerts in living well with Parkinson’s.

Grant History with The Seattle Foundation:

Grants Awarded through The Seattle Foundation Grantmaking Program:

DateAmountPurpose
9/17/2008 $10,000.00support general operating expenses.
6/21/2006 $10,000.00support general operating expenses.

Financials

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